We will learn how to access the registry so we can save ReNU medical information in one place! It is critical that ALL patients join the registry because researchers want to find therapeutics for groups that have the most amount of collected data, so uniting on a global level is one of the best things we can do to help advance research and treatment development for all of our families.
This will be virtual and the link will be updated closer to the event. We will record and post for those who can’t attend.
