Add your ReNU family member to the

International Map

This map may be used to facilitate collaboration within our community in the following ways:

DRIVE AWARENESS * BUILD COMMUNITY * ADVANCE RESEARCH

Locate clusters of patients & identify areas that may benefit from clinical specialists * Find convenient locations for holding events, conferences, or regional meetup groups * Track numbers of patients and variants globally to encourage research and treatment development

Click here to add a family member

At this time, the map does not yet populate automatically. Manual uploads are performed periodically. Thank you for your patience as you may not see each entry posted immediately upon submission. Some pins may overlap if they’re in the same location.