Awareness Initiatives

Ways to Get Involved

• Facebook Photo Frame: Email ReNU Syndrome United’s Director with a high-resolution photo and specify the language for your frame

  • For best results, ensure the subjects are centered and leave space around them so the frame doesn't cover them

• Warrior Wednesday: Every Wednesday, we will highlight one of our ReNU Warriors and share their story. Submit your story here to be featured and help us drive traffic to our website

• Share Your ReNU Story: Spread the word about ReNU Syndrome by sharing your story with your network, both online and in person

• Distribute ReNU Syndrome Guide & Testing Resources: Share these valuable resources with doctors' offices, local universities, diagnostic testing centers, and other relevant places

  • Contact us at united@renusyndrome.org to let us know how it went, what you learned, and if anyone wants to meet with ReNU Syndrome United to ask questions or share resources

• #MOVEforReNU 5K Fun Run: Join us for ReNU Syndrome's first virtual 5K fun run Saturday, April 26th, 2025. Whether you crawl, walk, sprint, or choose not to race at all, the goal is to have fun! Invite family, friends, and neighbors to participate. Registration is free! Click here to learn how to set up a fundraising page for your child/family and easily invite others to join your efforts.

• Facebook Fundraiser: ReNU Syndrome United has a nonprofit account with the PayPal Giving Fund, allowing anyone to create a Facebook Fundraiser in support of ReNU. 

• ReNU Swag: Shop for ReNU Swag at our Bonfire Store, where a portion of every sale goes towards ReNU Syndrome United. If you have local friends interested in ordering, consider placing a bulk order to save on shipping costs.

• Social Media: Take photos, and post them on social media with #ReNUwarrior #ReNUsyndrome #ReNUsyndromeunited #ReNUawareness #ReNUhope