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If you prefer to donate by check, please make it out to "ReNU Syndrome United" and contact us at renusyndromeunited@gmail.com to request the mailing address.

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Those affected often experience severe developmental delays, brain anomalies, low muscle tone, vision/mobility impairment, gastrointestinal issues, poor/absent speech, and seizures.

🧬 Thanks for your kind & generous gift to ReNU Syndrome United - it will enable us to build community, spread awareness, and advance research 🧬

“Increased awareness of ReNU syndrome can lead to more research, better medical understanding, and, ultimately, the development of therapies that could improve the quality of life for those affected. And just as important, experience and support from the broader community can lead to more empathy and resources for families like ours.”

- Lisa (ReNU Syndrome Mom)