Inaugural ReNU Hope Family Conference & Scientific Symposium
The first-ever international gathering of ReNU syndrome families, scientists, researchers, and clinicians following the groundbreaking RNU4-2 discovery
July 23rd, 11am - 3pm: Pre-Conference Family Event: Long Island Children’s Museum
July 24th, 8:30am - 8:30pm: Main Meeting of Families & Presenters: Long Island Marriott
July 25th, 9am - 3pm: Family Outing: location TBD & Scientific Symposium: Northwell Health 2000 Marcus Avenue
Showcase your support for the ReNU community
SPONSOR
Present, collaborate, and discuss therapeutic options
SUBMIT AN ABSTRACT
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Build Community
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Raise Awareness
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Advance Research
* Build Community * Raise Awareness * Advance Research
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Register here for the ReNU Hope Conference!
Wednesday July 23, 2025
11:00-3:00 pm: Complimentary Children’s Museum Family Event
1:00-2:00 pm: Pizza lunch to be Served in private room
4:00 pm: Check-in at hotel for anyone arriving that day
6:00-8:00 pm: Attendee Mixer in Hotel – appetizers served, kids welcome
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Thursday July 24, 2025
8:30-9:30 am: Breakfast in Grand Ballroom & check kids into ReNU Room & Sibling Space*
9:30-9:45 am: Intro to the ReNU Syndrome United Board
9:45-10:00 am: Sponsors Welcome Address
10:00-12:30 pm: Parent & Research Presentations
12:30-2:00 pm: Lunch Activity
2:00-4:00 pm: Family & Researcher Presentations
4:00-4:30 pm: Vision for the Future & Wrap up
4:30-6:00 pm: Free time
6:00-9:00 pm: Dinner in Grand Ballroom
*Optional childcare services will be provided by registered volunteers during the Family Conference on July 24th
___Friday July 25th, 2025
9:00-3:00 pm: Scientific Symposium for scientists/clinicians/researchers at Northwell
10:00-2:00 pm: Family Event - Picnic at Eisenhower Park
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To request a needs-based scholarship to attend, submit an email to: united@renusyndrome.org
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NY has Uber, Lyft, and taxi cabs available to get around easily. If you need a taxi from the airport, always use the taxi stand line, and do not go with anyone offering a ride from within the inside of the airport.
The primary airports are:
(JFK) John F. Kennedy Intl. Airport - 28.8 km / 17.9 mi
(LGA) LaGuardia Airport - 38 km / 23.6 mi
Other nearby airports include:
(HPN) Westchester County Airport - 65.2 km / 40.5 mi
(ISP) MacArthur Airport - 51 km / 31.7 mi
(FRG-Republic) Farmingdale, NY - 21.7 km / 13.5 mi
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There are a limited amount of reduced rate rooms available at $199 USD per night plus applicable taxes and fees for our ReNU room block:
CLICK HERE TO RESERVE YOUR ROOM TODAY
*Bookings must be made by Saturday, June 21, 2025 to be eligible for the reduced rate.
This rate may be applied to stays between Monday, July 21, 2025 through Saturday, July 26, 2025.
Our group outing to the Long Island Children’s Museum will be held on July 23rd from 11am - 3pm. Hotel check-in time is 4pm.
All reservations must be accompanied by a first night room deposit or guaranteed with a major credit card.
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Check-In: 4PM | Check-Out: 11AM
Hotel features include an indoor pool (floats not included), bar/lounge, 24-hour fitness center, and handicap accessible rooms are available upon request
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Click here to view or download a printable list of nearby attractions in NY
Arriving early? Join us for a complimentary outing at the Long Island Children’s Museum
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If you would like to present at the family conference and/or the scientific symposium, please click here:
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Click here to access our Sponsorship Package opportunities for this inaugural momentous event.
If you have already reviewed the sponsorship opportunities, APPLY HERE.
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Please fill out this Volunteer Form if you’re interested in volunteering to either work with ReNU children or their siblings, or helping out in other ways.
If your company requires a form to be completed for your PTO charity days, we will sign off on it once approved.
All volunteers will receive complimentary admission to the conference via a discount code.
Please ensure you have your discount code prior to purchasing a ticket.
