Join in ReNU Syndrome's first #MOVEforReNU 5K fun run!

Virtual event - Saturday April 26th, 2025

While we are calling it a 5K, the idea is to have fun! Crawl, walk, sprint, or don't do any race at all! We encourage you to invite your family, friends, and neighbors to participate! Registration is free! See instructions below to learn how you can setup a fundraising page for your child/family, and easily invite others to join in your fundraising efforts!

Your Participation is Powerful

We are building our roadmap to treatment options! By joining the Move for ReNU campaign, YOU have the power to help advance research forward for those affected by ReNU syndrome. We are exploring various therapeutic partnerships and avenues, many of which require significant financial investment. We are currently gathering and assessing options and enlisting the help of our global scientific and clinical advisors as we fundraise for the next steps. Your support will enable us to continue this vital work that moves us closer to understanding and treating ReNU syndrome.

🌟 Let's move together for a brighter future! 🌟

Set Up Your ReNU Team:

1. Click “Fundraise" to create your #MOVEforReNU team member page, follow instructions to customize with your content!

2. Share your fundraising page via social media and email and start raising funds.

3. Expand ReNU Syndrome's reach - invite family and friends! They are welcome to create a fundraising page too!

4. Increase Awareness by posting photos with family & friends during your virtual 5K & let us know who you are running for! 

5. Use hashtag #MOVEforReNU on all social media platforms.

If you already know of a team you’d like to support, search for or select it here: