ReNU Syndrome
Variants in RNU4-2 Uncovered as One of the Most Prevalent Causes of Rare Neurodevelopmental Disorders
Discovery Renews Hope for Affected Families Worldwide
Register Here
Have a diagnosis? There’s strength in numbers! Share your rare by adding a ReNU family member to the map or gallery.
Raise Awareness
Attend or support ReNU Hope events to help raise awareness with us!
Research
We need to get from discovery to clinical trial readiness! Participate now to accelerate research and the development of new drugs, devices, or other therapies!
More Information
Learn about how ReNU occurs, typical features and characteristics, how development is affected, and why this was only recently discovered!
Parent Connection
You’re not alone! ‘ReNU’ hope and find community with ReNU Syndrome parents worldwide that understand and relate to your experience.
Donations
Promoting more research, building community, and spreading awareness...there's still lots to learn and the sky is the limit!
