🎉🧬🎉 HAPPY 1st ReNU SYNDROME AWARENESS DAY!! 🎉🧬🎉

In honor of the discovery of the gene RNU4-2, the newly-formed ReNU syndrome community will be celebrating April 2 (4-2)!

The parent group has also deemed the month of April to be our awareness month and we will be celebrating internationally again on 4 February (4-2).

Our parent group that started in May as 3, 2025 has grown to over 400 members and continues to increase rapidly by the day!

💕 Thank you to all researchers, clinicians, scientific advisory board, and supporters - we are grateful for you today and every day! 🫶

Please spread awareness and invite your networks to check out the latest map with over 100 entries in over 20 countries, the pictures and stories about our ReNU Warriors, our donation link, and conference information. Let’s continue to #ReNUhope together!